National Geographic : 2008 Nov
PHOTO JOURNAL I ED KASHI In a home filled with tools for play and creativity, Herbie could rarely do more than watch from the sidelines-or the back door. Always "extremely kind," Herbie remained gentle even as his condition worsened, Kashi said. But Ed worried that Eli and Isabel would grow up fearing the future, "thinking that this is what getting old has to be like." As Herbie fell asleep at the end of a particularly difficult day, Julie and Ed found comfort in a weary embrace. "You have to look at caregiving as a marathon," Julie said, "not a sprint." The experience challenged every member of the family, but Herbie gave them all "a life lesson," Ed said, "in what it means to care for someone."